IBD Patient Stories

Your Stories.

The power that we all hold in sharing our stories is immense. Every IBD patient story that goes out affects the perception of our diseases out in the world. Take in others' stories of empowerment, resilience, and awareness.

Get included here, we'd love to share your slice of life with IBD: Share Your Story


From the Hospital to the Big Screen: Derek and the Crohnie Movie

From the Hospital to the Big Screen: Derek and the Crohnie Movie

From the Hospital to the Big Screen: Derek and the ‘Crohnie’ Movie A conversation with Derek Mari Recently, we had the chance to chat with Derek Mari about his diagnosis of Crohn’s disease, why he fights so hard against stigma and shame, and how he’s bringing this story (hopefully) to a really, really large audience ...
Adventures with an Ostomy

Adventures with an Ostomy

Adventures With An Ostomy Guest Post by Abbey Corbett Life. Life. It’s a beautiful thing. It’s unpredictable. It’s exciting. It’s maddening. It can change in the blink of an eye.  The year was 2009. I was sitting with one of my roommates at college when something caught my eye on the muted TV screen. It ...
Married to Crohn’s Disease

Married to Crohn’s Disease

Married to Crohn’s Disease Guest Post “If I had the world to give, I’d give to you as long as you live.” -Jerry Garcia Marriage and Crohn’s Disease A lot of people ask me what it’s like to be married to someone with Crohn’s disease. Well, I’ve never been married to anyone without Crohn’s disease, ...
Learning Life as a Parent of IBD

Learning Life as a Parent of IBD

Learning Life as a Parent of IBD Guest Post by Tracy Jackson Knowledge is Power When I became pregnant, I read everything. I read parenting books, psychology books, what to expect books, you name it, I probably read it. To me, knowledge is power, the more I know the better it will be to handle ...
Along the Journey of Crohn’s

Along the Journey of Crohn’s

Along the Journey of Crohn’s Guest Post by Erica Baker I don’t know where to begin. It has been suggested to me many times that I write down the story of my journey through college, getting a grown up job, getting married, having a baby and oh, yeah having Crohn’s disease. I am not truly sure ...
Conquering Crohn’s

Conquering Crohn’s

Conquering Crohn’s Guest Post by Robbie Kochs I want to start by saying one thing to anyone and everyone, whether you have Crohn’s Disease, IBD, a chronic illness, or anything at all. If you have a dream, a goal, a vision, go out and get it. NEVER let anything stop you from reaching this dream. ...
Crohn’s, Colitis, and Being a Parent

Crohn’s, Colitis, and Being a Parent

Crohn’s, Colitis, and Being a Parent We had the chance to sit down and chat with two very special people about an important topic – IBD and Parenting. In this post, we compare, via discussion, parenting roles with IBD. They share their emotions, fears, and what it means to be a parent. Frank Garufi, Jr ...
IBD and the Weight Loss Struggle

IBD and the Weight Loss Struggle

Thanks and admiration to our friend Eliza for opening up about this sensitive topic, and reaching others who may need to hear her story. Weight, a topic most people care not to always talk about. Add in having IBD and that’s a whole new ballgame. I’ve struggled with my weight for more than half my ...
Cheering Despite Crohn’s

Cheering Despite Crohn’s

Cheering Despite Crohn’s This guest interview comes from a young girl who didn’t let a Crohn’s diagnosis take away her strength and spirit. Read about how Crohn’s has changed her life, why she’ll never give up on her dreams, and her advice for other kids going through the same thing. GBM:  Let’s start by having ...
Emily’s Clinical Trial Journey

Emily’s Clinical Trial Journey

Emily’s Clinical Trial Journey Emily, like so many Crohn’s patients, has struggled with symptoms on and off for several years. She’s tried nearly every approved medication available, and on top of the everyday pain of dealing with disease, she’s got the added anxiety of feeling like she’s running out of options. Emily’s decision to enter ...
To Talk, or Not To Talk?

To Talk, or Not To Talk?

To talk, or not to talk? That is the question. Okay, so if Shakespeare were here and had Inflammatory Bowel Disease he would totally be asking you that exact question right? I COMPLETELY understand that talking openly and honestly about Inflammatory Bowel Disease, whether you have Crohn’s Disease or Ulcerative Colitis has probably sent many ...
I’m Sick-Sick

I’m Sick-Sick

So now that the holiday season has come and gone, the New Year is usually a time when we all reflect on the previous year and think about how we want to change going forward. I took this time, however, to think about how I spent my holiday season – sick. And no, I wasn’t ...