Category: Community News

As a patient of Inflammatory Bowel Disease, have you ever felt lost? What a ridiculous question. We've all felt lost at one time or another. Managing the chronic illness experience is confusing, time consuming, exhausting, and certainly doesn't come with a guidebook. When we recently heard about Pack Health and their entrance into the IBD space, we were extremely excited to see someone else recognize this gap - this need for a guide - and put together a program that actually works to do it successfully. Pack Health works with IBD and other chronic illness patients to be strong partners in the patient experience. The program works by matching you with an expert that's educated and experienced in navigating the specific challenges of IBD, and they do it at a professional level, so they can be trusted to provide reliable and accurate resources. This health coach connects you as a patient, to all the points you manage, and helps you get it all...

HealtheVoices 5: A Little Heart Can Do Big Things We were honored to have attended the #HealtheVoices19 conference: A Little Heart Can Do Big Things. At some point (or probably many points, the conference was a blur!) I was asked, as a first year advisor, how HealtheVoices has changed since its inception. It took me a while to figure out how to respond to this, because honestly, there are so many things, and growth like this takes time to absorb. The first year was like a good first date. We knew there was potential, we had an idea of what we wanted, but we just needed to figure out how to build up. Year two saw some growth and familiarity come into play. By year three, we had found our groove, and from there, a really, really good thing just became greater and greater. The faces that have experienced, and contributed to, HealtheVoices over the years have brought in some different perspectives, and...

American Eagle’s intimates brand, Aerie, has always been a leader in featuring real, unretouched women in their product campaigns. They do a great job of not making the individuals featured seem like outliers, or the spotlighted exception to the traditional model – rather, they’re there. They’re featured in ads and product listings, no big deal, as if they were the norm. Because, guess what, they are the norm. So this week when we tapped into our social feeds, we were super excited to see a face we recognized right there on the product listing, our friend Gaylyn Henderson of Gutless and Glamorous. There’s no denying Gaylyn is gorgeous and brave and strong and unashamed. She’s the perfect representation of ostomates and IBDers for a spot like this. We’re SO proud of her and so overjoyed to see a company like Aerie include her among others with varying diseases and disabilities in their product features. Having women like her featured is a total...

"Listen" wasn't the theme of the 2018 #HealtheVoices conference. It was actually Stronger Together. The #StrongerTogether theme was reflected throughout the entire conference, as empowered patient advocates and industry experts came together for valuable sessions on things like podcasting, caregiving, photography, social media, and so much more. Attendees informally got together to host impromptu Facebook live sessions, Twitter chats, and even in-person meetups. Nearly everyone brought their skills to share, enough for the whole class. Collaborate, learn, and become Stronger Together, we did. That same theme was reflected as attendees shared their own disease stories and experiences within their own condition communities. Being diagnosed with one condition made individuals stronger for when a second diagnosis came along. It has made people stronger when chronic conditions turn, and now the patient is the caregiver. Every single person in attendance has grown stronger because of the things life has handed them, and then, because of the communities they've built around them. An empowered patient advocate...